Complex Care

Parent-to-Parent Support for Complex Needs

Parents supporting individuals with complex support needs often navigate many responsibilities at once—coordinating care, advocating across systems, and making thoughtful decisions each day to support their loved one’s well‑being. This journey can feel isolating, especially when others may not fully understand the realities families face. Parent‑to‑parent support creates an opportunity to connect with other caregivers who share similar experiences. These connections offer understanding, encouragement, and practical insights rooted in lived experience, helping parents feel less alone and more supported as they continue caring for their loved ones.

Autism Society Inland Empire
ieautism.org
Riverside and San Bernardino Counties – (951) 220-6922
info@ieautism.org
Parent Specialists support families in crisis by providing emotional support, linking them to needed services, and connecting them with local care and resources. They also offer guidance on advocacy with schools and/or agencies and share valuable insights drawn from their lived experience.

National Council on Severe Autism
https://www.ncsautism.org/
National organization that focuses on recognition, policy, and solutions for those affected by severe Autism. Offers free podcasts and webinars.

Open Doors Mental Health Parent Support and Training
https://ruhealth.org/behavioral-health/parent-support-training-program
Riverside – (951) 358-5862
Parent support group is held on the 4th Thursday of each month, from 5:30 pm-7:30 pm, in person, for parents/caregivers of children/youth with mental health, emotional, and behavioral challenges.

Profound Autism Alliance
www.profoundautism.org/
National organization that offers public policy, educational webinars, podcasts, and resources for this population.

Autism Society Options Policy